Center for Information & Study on Clinical Research Participation (CISCRP)
CISCRP, the Center for Information and Study on Clinical Research Participation, is an independent, nonprofit that has worked globally to understand and improve participant experiences in clinical research for over 17 years. We conduct qualitative and quantitative research, and deliver programming that engages, educates and empowers a wide-range of stakeholders in clinical research. Through outreach and media campaigns we educate the public, patients, medical/research communities, the media, and policy makers about clinical research and the role each party plays in the process. We measure public and patient perceptions of and experiences in clinical research, and collaborate with patients, caregivers, advocates and others to generate input on study protocols, communications, and technologies. And, in order to ensure there is clear, appropriate and empowering information shared with all stakeholders, we develop and deliver research communications for Informed Consent, study results and treatment assignment, sponsor study registries, and educational web portals.
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